Donations of $2 or over are tax deductible. We appreciate your support to provide hope for brain injury.
05/09/2017 9:00:00 AM - 30/06/2019 5:00:00 PM
Current Total Raised:
Donate Now and Help Maya
Live her Best Life
Hi my name is Maya. I am 12 years old. I love spending as much time as possible enjoying my life and making every moment count.
You see I am palliative. That means I am not expected to live to be an adult because I have many serious life threatening medical conditions. I have a disability called Velo Cardio Facial Syndrome (also known as 22q deletion). This disability causes many anomalies and sadly I have a lot of them. I have an intellectual impairment and Autism and I use a wheelchair for mobility because I am an incomplete paraplegic.
I have oxygen tubes to help me breath all the time. I cannot eat enough food to survive because I cannot digest food properly, so I have a feeding tube. I have shunts in my brain and spine and steel rods in my back to keep me from being in pain. I have a permanent intravenous drip in my chest that mummy manages at home. I also have complete bowel and urine failure which means my bowel has been brought to the outside of my tummy and I have a special bowel bag.
There are so many medical diagnoses and I could on for hours. I choose though to tell you about what I love.
I love to go the beach. In fact it is my favourite place in the whole world and I will try and get mummy to take me every single day!
I love the colour yellow and drinking pretend tea from real fine bone china teacups and teapots.
I love to watch the Wiggles and Teletubbies and talk about them ALL day long. I take my Teletubby toys with me almost everywhere I go.
I also love the snow and dream of a trip back to the snow to build a snowman (mummy drove me there when I was little and a lot more stable healthwise).
Some days I cannot wake up and sleep all day and some days I am feeling very, very unwell. On the days I am feeling good we have the best adventures. We get a little bit of help from the government for things like a standard wheelchair and 1 nappy a day for the year. The rest of the medical and disability equipment that I need mummy has to fundraise for.
We need your help to raise the extra approximately $20,000 it will cost this year to meet costs not covered by disability or health services and to help me live a full life out of hospital making moments count.
I have a Facebook page called Maya's Mates and you can share my journey there and learn more about me and watch me grow. I also share information on all of the equipment and therapy for you to see exactly where your generous donations go. You make a real difference to my quality of life.
If you would like to learn more please email my mummy on email@example.com.
Equipment and aids $9,250
Rifts Activity Hilo chair $4,700
Accessible Vehicle upkeep and maintenance $2,000
Splashy Chair $750
Stimulite cushion for beach wheelchair $700
Air Mattress and Stats Monitoring Machine $700
Wheelchair Harness $400
Disability Modifications $4,650
Community Access/Support $2,000
In home support and personal care $2,800
Thank you for your support
Maya and Rabecca (my mummy)
Please note: 90% of funds raised go directly to meet Maya's needs. 10% of funds raised cover the costs for The Developing Foundation to support Maya and manage her funds.
4 December 2017
All the best for a happy Christmas! Hope you get to enjoy some lovely beach adventures!
1 October 2017
Dear Rebecca, Anna Russell a very good friend of my daughter Emily has asked nicely for instead of birthday presents, could her friends please donation to Maya. Which I thought was pretty special. Best Wishes, Wendy.
Brosi Burke family
17 September 2017
Hi Beck and maya, for some reason we couldn't register for the river walk so thought we'd go straight to your page. Looking forward to walking with you today x Carol, mike, Liam aidan Rhys Brian Elsie and maria x
16 September 2017
Love you Maya xx
14 September 2017
13 September 2017
Good luck with the walk Princess Maya and Bec, sorry we cant be there in person - have fun