Seeking answers and solutions for developmental disability through early intervention practice and research.
20/07/2015 9:00:00 AM - 30/06/2016 5:00:00 PM
Current Total Raised:
My Name is Madison and I'm a teenager living with Cerebral Palsy.
As I can't stand or walk independently I spend a lot of time sitting in my wheelchair which isn't good for my health. I really need a new Sit to Stand wheelchair so that I can get up on my feet whenever I need and to help with my circulation and bone density. I also expect to be finishing year 12 next year and want to get a job so being able to stand up to talk to people and reach things will help me be more independent.
These chairs are really expensive and government funding only covers about $5,000 which is 10% of the cost. You can help me by making a donation or even coming along to a fund raising event as we have a big gap to close quickly. Donations of $2 or more are tax deductable.
You can also follow me on Facebook here www.facebook.com/maddiesmates
From the age of one I've been doing all sorts of therapy - physio, speech, occupational. I've done all this therapy so that one day I will be able to do everyday things and get the most out of life. The most important of all is to be able to get out of my chair and have some mobility which will allow me to have more independence.
I have had quite a few health issues in the last year, one of them being severe Scoliosis (curvature of the spine) which is impacting my lungs. In order to delay having spinal surgery in the next few years the doctors advised that I would need to get out of my wheelchair more. However if the surgery is necessary my bones need to be strong enough which means I have to be on my feet more and exercising to build up the density. I have already increased my therapy to include hydrotherapy twice a week, gym once a week and see the physio as well. I've also been wearing a Second Skin suit that helps straighten my back but I've now grown out of this so am about to get a new one. I am hoping this will delay the surgery and at the same time improve my general health and decrease my back pain.
My journey over the past couple of years has been a tough one. In October 2011, I had some major surgery on my legs and hips to make them straight and prevent my hips from dislocating (bilateral osteotomy). I also had some of the muscles in my legs and hips lengthened so I could stand up straight meaning I had a term off school to recover. Knowing it was going to take at least a year or so of hard work I've been doing lots of physio and exercises to get back to where I was before the surgery and learn to use my straightened legs. Through the money raised a few years ago from Riverwalk, I have a walking frame that I use to aid in the strengthening of my legs. I now also use my walker to practise my walking and try to improve my balance. I also wear special orthotic boots (which I'm not too fond of) but they're important to get my feet growing correctly and they help me to stand without hurting myself, meaning as my feet grow they cost more and more.
I love doing all the things most kids my age enjoy such as going camping with my family and I was lucky enough to go to school camps and with the Girl Guides and Scouts. It was at these camps that I got to do activities such as abseiling, canoeing and going on a flying fox. I also like doing things on my iPad, watching the tennis, the Brisbane Broncos and the Brisbane Lions football teams. I enjoy swimming and riding my specially made bike. I have my own website now (www.maddiesmates.com) where you can see some videos and pictures of what I've been doing. I also have a Facebook page (Maddies Mates) and some short videos of my riding on YouTube.
There have been a lot of really special people that have helped me get to where I am today but I have so many dreams I want to achieve. I really want to be able to do as much as I can for myself, I want to get a job, travel, and just do the things everyone else can do but I need some help to make that happen.
Thank you for taking the time to read my story, I've already come so far but I still have a long way to go.