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Hi My name is Tallis and I'm 6. I have Cerebral Palsy and Autism and I love life. School is amazing and I count down the days of holidays til I can go back. I find it challenging with my Autism but I go to a great school and they are wonderful.
I am currently receiving Government funding for my Autism but unfortunately that runs out when I turn 7 in February : ( A term of therapy can costs up to $1800 depending on how many weeks in the term of course. Thanks to the work that Mum and I have done with Autism Queensland I have come so far and it would make me sad to stop because the funding has. Please help me continue to get better at communicating my needs and not be so anxious and stressed all the time.
I rely on a wheelchair to get about and I am having fun trialling a power wheelchair at school. I look forward to getting one all of my very own hopefully soon. Unfortunately the Government doesn't cover the whole cost of this so my Mum will have to pay for the gap which depending on which chair is the best for me could be several thousand dollars. However, to get this one through the Government Mum has to buy my new manual wheelchair with no Government assistance as they only help with one chair. My last chair cost $4000 and I have just gotten measured up for a new one. We are still waiting for the final figures to come through on the new order but I'm sure this one will cost more than the last.
Why do I need two chairs? I need a manual wheelchair so that when the power/electric chair is in for service or repair I can still get around. My Mum can't carry me anymore as I'm over 30 kgs and I can't walk.
We have also begun Bowen Therapy for my body that is tightening up so much the bigger I get. It is very painful for me to try to stretch out and Bowen Therapy helps my body to get in alignment and relax. The results have been very positive so far. Luckily for us the lady I am seeing is letting us trial it for free but she will start charging at a reduced rate soon and at this reduced rate of weekly appointments this will still be over $1500 annually. She will also start therapy on my sister too in the future once I am more comfortable and less tight. This will mean another fee per week.
My Mum does the best she can but she needs your help to give me the chairs I need to get around, the therapy to keep my progress going with my Autism and for my body to keep up with my growth.
Now please let me introduce you to my little sister Jazmine. She is 19 months old and she had Cerebral Palsy also. She has had to be on extra oxygen through prongs that go up her nose also but we are trying to have her without it now so we'll see how she goes. She is very delayed as she is not sitting, crawling or walking yet. However, she is rolling, pivoting and commando crawling along the floor. She is doing well and we are so proud of her progress. We have begun the Neuro Developmental Home Therapy Program with Ian Hunter and this costs $1500 per year. We are hoping to step this up further with a Volunteer program once my Step-Dad and Jazmine's Dad has recovered from his heart bypass later on this year.
She is a great sister but I don't like it when she comes and steals my games off me when we are lying on the floor together but I suppose that's what sisters do.
Thank you so much for taking the time to learn more about me and my sister Jazmine and I hope that you can find it in your heart to help my Mum. She tries so hard to help us achieve the best we can do and to provide for us the essentials, like my wheelchairs.
Take care and Best Regards.
Tallis, Jazmine, Joanna and Peter

