Create an Appeal
Show you care by collecting donations with your own appeals page.
Our Families
- Fundraising Target:
- $ 26,500.00
- Donations to Date:
- $ 14,253.75
Messages of Support
Maya's Mates
Sponsored By
Description
Vision Statement
Our wish for Maya is to live a happy, pain free, fun filled life that provides her with opportunities to be the best that she can be.
Hi my name is Maya. I am six years old. When I am well, I love to zoom around in my wheelchair and play with my cousins and friends. I love the moon and stars and rainbows and painting. A great day for me is a day when I can stay out of hospital and be at home with my mummy and play with my cousins and play in my clamshell pool and sandpit.
Mummy says that even though I am so sick and have so much to deal with I am a very special little girl who has a beautiful personality and I am very loving and cheerful despite my unfair sickness. She is very proud to have such a strong little girl who takes everything in her stride and still manages to smile and enjoy all that life has to give.
Mummy also says I remind her to enjoy the simple things in life and that even when all seems lost there is always hope.
I was born with Velo Cardio Facial Syndrome. This Syndrome is caused by a deletion in the 22 chromosome pair when I was in mummy’s tummy. My syndrome has given me Spina Bifida which has made me an incomplete paraplegic and Hydrocephalus which is fluid on my brain. I have a moderate Intellectual disability as a result of the Hydrocephalus. Since I was born I have had 9 brain surgeries and at least 20 other major and minor surgeries. I live with my mummy and just started special school last year.
I really love school but I don’t get to go very much because I spend a lot of time in hospital due to all my medical problems. Mummy feeds me and gives me my medications through a button in my tummy, as I have difficulty swallowing and chewing, due to my brain damage. When I am sleeping or if I am sick, I require oxygen through nose prongs, as I stop breathing at times because my brain forgets to tell me to breath. Added to this I have respiratory failure and my lungs aren’t strong or big enough for my body. I have special shunts in my back and brain to move the fluid around because my body can’t do it on its own. To help me stay straight so that I can sit up and breathe more easily I have metal rods and screws in my back. I require numerous intravenous antibiotics and blood testing so the doctors have inserted a special needle port in my chest which allows medical staff to access my blood more easily. This means I don’t have to get lots of needles all the time.
I have many hard days when I have to have lots of medical things done to me and I get very sad and scared. I spend a lot of time at the hospital and at therapy appointments and with specialists. When I was born the doctors told mummy I wouldn’t be here long. I am still here and every day I get stronger and learn new things. My mummy and I need help to ensure I receive the best medical care and therapy services there are so that I can grow both physically and mentally to my fullest potential. There are many ways in which you can help me achieve the little things in life I am striving for.
To become one of Maya’s Mates, you could:
• Sponsor our team by making a tax deductible donation
• Promote awareness by emailing Maya’s web page to your friends and family
• Join us on 12 September for the Riverwalk
If you would like to learn more please email mayasmates@y7mail.com or check out the cause page on Facebook called ‘Maya’s Mates’, where you can follow her achievements.
All funds raised are managed by The Developing Foundation Inc. 90% of the funds raised go directly to Maya’s special needs. The balance is used to cover administration and credit charges. All donations of $2 or more are tax deductible and you will not receive any additional credit card charges.
Any support you are able to offer is very much appreciated.
Maya and Rabecca
